Late last week, little Charlie Gard passed away — he was almost a year old.
However, the fight does not stop here for his parents.
Chris Gard and Connie Yates, Charlie’s parents, are starting a foundation with the sole purpose of helping other children with genetic disorders.
Charlie Gard’s parents hope that their son’s legacy will help spare other children from what their family had to go through.
Reports indicate the family hopes to set up a foundation to help other children with rare genetic disorders.
The British infant died Friday after his life support was removed, following a lengthy court battle between his parents and hospital. He would have celebrated his 1st birthday on Aug. 4.
Charlie suffered from a rare mitochondrial disease and brain damage. He was at the center of a massive international debate after the hospital refused to allow an experimental treatment to help him and also refused to transfer him to another hospital that would allow the treatment.
Charlie’s parents took their fight to numerous courts to protect his life but to no avail. The courts argued that it was in Charlie’s best interest to be removed from life support.
During the trying ordeal, Chris Gard and Connie Yates, Charlie’s parents, raised more than £1.3 million (about $1.7 million) in donations for his medical care and legal fees.
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